If you didn't know, Yom Kippur is Monday after next. And if you didn't know, it's the Day of Atonement.
And I know you didn't know it's the day my father will find out whether, in the eyes of the transplant center, he merits a spot in the liver transplant pool.
When I wrote about him last he was "recuperating" at home; now, after a brief stint at his brother's house a couple of hours away, he's in the hospital, back in his hometown. He's in a bed in a building he's worked in since before I was born; caring for him are people who have known him as long as I've been alive. I reckon they're as much family to him as we are, at this point.
His house is packed up, what remains of his personal belongings (and those few things that are rightfully ours -- the giant box of family photographs, the odd surviving toy) boxed in the garage. Goodwill came for most of the furniture. His brother -- his seventy-plus-year-old brother -- did all this for him; the "angel" of a real estate agent helped coordinate things. The house goes on the market as soon as all the papers get signed. If he gets on the list, he'll have to stay in a hospital in another city; if not, I don't like to think about it. Hospice.
He won't be going back to that house, ever.
It was our house, all of ours; we all lived there before my parents got divorced, then my sisters and I and our mother after. When we left for the East Coast my dad moved in, and while our familiar furniture was mostly replaced with the crappy divorced-dad-apartment stuff, a few things stayed completely untouched: on my old bedroom wall, for example, a pencil rendering of John Lennon, a copied illustration from Faeries. Under the sink in the bathroom, last summer, I found a box of hair dye. I hadn't used Balsam Color (the cheapest! the cancer-iest!) since I was fourteen.
It used to be so beautiful, that house. It was sunny and bright and full of nooks and crannies for hide and seek; it had a beautiful yard and a treehouse/chicken coop and tire swings. There was a half-size tennis court in the backyard where we would rollerskate, bike, set off firecrackers, and where once, at my own birthday party, I gave myself a bona fide concussion during an ill-conceived relay race. It turned into a mausoleum as my dad left rooms untouched, let papers pile up in others, tidied -- or maybe just didn't have any stuff -- but never cleaned. It got so dusty I couldn't breathe, on my later visits back, and the curtains were always drawn. The glass got broken out of the lamp in the front yard, and three years later, it's still broken.
* * * *
I don't have a lot of patience with addicts. Having departed from the familial strategy of denial with a side of enabling, I find myself looking hard-hearted, mean even, when I say don't let him stay with you "just two weeks," don't give her money, don't bail that one out of jail again (yes, we've got quite a family history, and that's not even on my dad's side). I never believed any of the crap my dad said -- that he bought airline tickets to visit us and then had to cancel at the last minute because of "the flu", that he just had to taper off the steroids and then things would be "just like old times."
He wasn't drinking by that point, but the behavior was still in full effect. "Just like old times," as he was quite clearly in decompensated liver failure. As he was sitting there with yellow-gray skin, no longer eating. "Sure, Dad," I told him, and hung up. And then called up his brother and told him the truth -- what my sisters and I had figured out and confirmed with my dad's doctors -- that things could go downhill, fast. That he was not competent to care for himself, even as he told us he had it "all under control."
Hepatic encephalopathy (HE) is what happens when the liver craps out and stops removing toxins from the blood, poisoning your brain. (Okay, that's the Highlights Magazine version.) You get slurred speech, fuzzy thinking, clumsiness, disturbed sleep. You might, say, forget to eat (which you don't feel like doing anyway). You might forget to take your medication, and you might get really grouchy with the people trying to help.
It's hard to know where ingrained addict behavior, even independent of the addicting substance, leaves off and hepatic encephalopathy begins. For that matter, it's hard to know how much of it is just personality. But how much of an addict's personality is truly his own? How much of that person is the one you love, and how much of it is the net of mechanisms designed to protect the drinking and push away those meddlin' kids? Who wasn't interested in the new babies, the drinking Dad or the "real" one? I'd get calls from him that were morose, nonsensical, argued in a circle. Then I'd catch him sober and he'd sound like the Dad I remembered, telling funny stories, asking after the babies. Then he stopped sounding drunk and stared sounding...addled. Somewhere else. That was the HE.
So what's there? What's left of Dad? How much of it is him in the first place?
And how much longer do we have with what there is?
* * * *
Would it be easier if I didn't love him so danged much? Would it be any better if he were an awful person? He is human, and like most of us, boy, is he damaged, but he is also fundamentally good. Even when he wasn't together enough to remember our birthdays, he was providing, providing, providing. At his best he's hilarious, affectionate, silly, kind. Generous. Patient with small children.
That's the person I want back, just for a little bit; that's who I want my girls and niece and nephew to know. He played tea party with Sophia last summer, Sophia who was so overwhelmed with all the new people and he was so patient, he just waited for her to come to him and then -- wonders! -- she crawled up in his lap. They sipped imaginary tea. She remembers him, she wants to talk to him on the phone, but he can barely even talk to me for two minutes. If he stays in the hospital -- oh, if he never leaves it -- she won't get to see him again.
I'm going out to see him, as soon as I can manage it. As soon as I know where he'll be in two weeks (if he gets on the transplant list, he'll move to another city to wait for a new liver; if he doesn't he'll move to a facility of some sort near his brother).
So say a prayer, if you're the praying type. Think a healing thought, light a candle. Me, I pray that I get a chance to tell my dad, in person, so I can see he understands, that we know, we know all about it, we've always known everything -- and we have always loved him anyway.